A novel system to measure ophthalmic quality of life: the eye-tem bank

Session Details

Session Title: Cataract Surgery Outcomes/Practice Styles/Biometry

Session Date/Time: Monday 12/09/2016 | 14:00-16:00

Paper Time: 14:12

Venue: Auditorium C6

First Author: : K.Pesudovs AUSTRALIA

Co Author(s): :    J. Khadka   M. Prem Senthil   E. Fenwick   E. Lamoureux           

Abstract Details

Purpose:

We aim to develop comprehensive and technologically advanced web-based quality of life (QoL) patient-reported outcome measures in the form of item banking implemented via a computer adaptive testing system for all eye diseases (the Eye-tem Bank) suitable for all population worldwide.

Setting:

Royal Adelaide Hospital, Adelaide; the Queen Elizabeth Hospital, Adelaide; the Royal Victorian Eye and Ear Hospital, Melbourne; Ashford Advanced Eye Clinic, Adelaide; Adelaide Eye and Retina Centre; Adelaide.

Methods:

The Eye-tem Bank has 13 disease modules: age-related macular degeneration (AMD), glaucoma, diabetic retinopathy (DR), retinal detachment (RD) , other vitreo-retinal, cornea, refractive error, cataract, amblyopia & strabismus, lacrimal & ocular surface, inflammation other than uveitis, uveitis spectrum of diseases and neuro-ophthalmic). Each disease-specific module undergoes a systematic four-phase method for development: Phase I, item identification using qualitative methods (literature, patients and experts consultations); Phase II: Pilot testing the initial item sets for item calibration using Rasch analysis; Phase III: Validation of the module implemented via a CAT system; and Phase IV: Evaluating QoL impact using each disease-specific module.

Results:

A total of 547 patients participated in phase I (disease-specific 52 focus groups and 326 interviews). The other vitreo-retinal group is separated into hereditary (HD) and acquired (AD) because only 29% of QoL issues are common between these two. Pilot instruments have been developed for AMD, glaucoma, DR, HD and AD. A total of 1651 unique items have been identified across these modules. Around 50% of these items are common. Phase II for DR and glaucoma have been completed and both modules demonstrated promising Rasch-analysis based psychometric properties. Phase II data collection is ongoing for AMD, HD and AD.

Conclusions:

Phase I of the Eye-tem Bank has been completed. Less than half of the items are common across the disease groups which signify that each disease group requires a disease-specific measure. Based on this, we hypothesise that the final Eye-tem Bank will have a core item set comprising common items and disease-specific item sets. The pilot items of glaucoma and DR modules have been calibrated using Rasch analysis to setup CAT system. Each disease-specific CAT will be subjected to a series of validity and reliability tests. All the other modules will follow the same development steps.

Financial Disclosure:

NONE